Posts Tagged ‘‘rare’’
Community
Nearly 1 in 10 Americans lives with a rare disease
Did you know that the identical number of folks die every single year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And however IPF, a rare and debilitating illness that causes permanent scarring of the lungs, i...
Community
Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond
Receiving a diagnosis is just the initial of numerous challenges sufferers with rare diseases &ndash and their caregivers &ndash face. &ldquoWe went by way of a number of specialists till we discovered a team tha...
Community
Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma
In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is critical to drive awareness about some uncommon cancers that are numerous instances undiagnosed until the cancer has already spread. 1 certain cancer, ...
Family
A woman’s ‘rare’ journey: life with an uncommon disease
Everyone has a rare quality or a characteristic that sets him or her apart from others – a special talent, a unique interest or, for some, a rare disease. A disease is considered ‘rare’ if it affects fewer tha...