Posts Tagged ‘‘rare’’
 
 
 
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Rare moms join together to bring attention to rare diseases

Every parent knows that caring for young children can wear you down to the bone. But imagine what that would be like if your child’s life was at risk every waking minute. That’s just a normal day for Sarah Yang, who...
 
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Rare diseases: Increasing awareness for better patient outcomes

Acquiring a diagnosis of any cancer can be frightening, but for these diagnosed with a uncommon cancer, the emotional toll can be significantly worse. For some of these sufferers, the journey to a correct diagnosis could take y...

 
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Igniting the conversation about rare diseases

Every year, men and women across the globe are invited to join with each other to raise awareness about rare diseases. In contrast to far more typical situations such as diabetes and breast cancer, several of these diseases, as...
 
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Nearly 1 in 10 Americans lives with a rare disease

Did you know that the identical number of folks die every single year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And however IPF, a rare and debilitating illness that causes permanent scarring of the lungs, i...
 
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Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Receiving a diagnosis is just the initial of numerous challenges sufferers with rare diseases &ndash and their caregivers &ndash face. &ldquoWe went by way of a number of specialists till we discovered a team tha...